Many of you have read my posts about our 3 yr old granddaughter Lily and her fight with Leukemia.
hubby (papa) went to a Chemo treatment with her while we were there on a Tuesday and the following Saturday Lily's hair began to come out in clumps
so 3 weeks ago Jana (mom) took her to have her head shaved- so daddy Jake and Papa did too
Andy Grammar Came to see AND sing to Lily while she was in the hospital in late August see a video HERE
Lily is currently back in the hospital for about 3 weeks. The infection she had and the chemo treatments have triggered a RARE Liver disease and now they are fighting that as well as her Leukemia
PLEASE Pray for our 3 yr old granddaughter Lily Ross- #Lilystrong
As you know, being in the hospital is hard, not only for Lily but for her Mom and her 1 year old sister. It's not all smiles, but they are strong and melt my heart.
Here is her mom's fb update- So I just wanted to give you all an update on Lily. We have been readmitted to the hospital since yesterday and she has been diagnosed with a liver disease called VOD veno-occlusal disease. It's basically where the little veins in her liver have formed little clots so all the fluid that they had been giving her for the dehydration wasn't getting absorbed and it's filtered out into her abdomen where it can't be used. It's a very serious disease but Lily only has a moderate case. There isn't really a treatment for it as most of the time it will resolve its self. Right now we are just focusing on getting rid of the extra fluid in her belly that is just sitting. We are doing this by giving her diuretics and an artificial protein. The extra fluid has engorged her belly and is making it hard for her to breathe. She has gained 6 pounds in 4 days from the water retention!! If the liver doesn't appear to begin to function normally within the next couple days there is an experimental drug that we can try and if that doesn't work then we will probably be going to salt lake or Portland for further treatment/transplant (worse case scenario). Right now her Drs are fairly confident that this will reverse its self and that we will start to see more normal liver function in the next few days. Thanks for all the support and prayers as we have been told this will be a long hospital stay, probably 3-4 weeks. #lilystrong